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Get connected with the Metabolic Community.  Click on a link below to visit websites of a family support group near you!

 US Groups     


Children’s PKU Network

FOD Family Support Group

National PKU News
National PKU Alliance
NORD (National Organization for Rare Diseases)
MSUD Family Support Group
Organic Acidemia Association

PKU World Link

 Canadian Groups       
Canadian PKU and Allied Disorders

 Regional Groups      


Georgia PKU Connect

Florida PKU Foundation

The Mid-Atlantic Connection for PKU and Allied Disorders (MACPAD)

Intermountain PKU and Allied Disorders

PKU Organization of Illinois

Indiana PKU and Allied Disorders Association

Iowa PKU Foundation

Michigan PKU and Allied Disorders

Minnesota PKU Foundation

New England Connection for PKU and Allied Disorders

Tennessee PKU Foundation

North Texas PKU Association

Ryans PKU Foundation (Virginia)

PKU and Allied Disorders of Wisconsin


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