Would love to talk with some parents of children with MSUD!
I have a 13 month old Conner - things have been going good so far, but he is now refusing to eat (ear infections and teething!) any adivce would be great on how to get this handsome man to eat!! :)
Hope all is going well with you and your family!
jess
PAPoohsDad
User Posts:
5
Re: Children with MSUD? Posted on:
March 28, 2006 13:58 GMT -01:00
Ear infections were the worse for us. They often raised her levels and sometimes required visits to CHOP. Eventually, we had to get the tubes put in her ears. That wasn't fun for her, but it stopped the infections. By now you are full aware of the many complications of msud, loss of apetite being of course one of them. All i can say is change of foods, flavors, anything to make it new. For our daughter, she was just coming off the feeding tube around that time.
